Wednesday, October 27, 2010

Close to my 3 month date

So here I am, at the end of October. This may be my favorite month of the year. So much relief after the hot Texas summer. The heat still turns my legs to noodles so yay for fall!! I almost feel like I am on a rollercoaster ride. Yesterday things felt really great. Today I have to say not quite the same. I am working to find a place to do my 3 month followup scans of my jugular veins. So far I have not had luck finding the right dr.

I feel a little confused as to whether my hope to have things be better had me convinced or possibly I have some restenonsis going on. I really want and need my legs to be stronger. I know I need to get this recumbent rower I have my eye, on to help strengthen them. Has to be next month though. Financially a bad month to get it.
I am taking real estate classes. I thnk I will have my license by the first of the new year and will be diving into that world. Once again, I am sure I feel better than I did a few months ago, I am grateful for that. Just anxious to be stronger. Really happy for the good overall feeling of health, I just want strength!! Patience my dear!!

Sunday, September 12, 2010

CCSVI is hope for people with MS, no doubt

So when I was diagnosed way back in 92 there was no medication available to help people with MS. Today 18 years later the only medications available help about 30% of the time at best. While spending around $25,000 per year to have miserable side effects, not to mention who knows what the long term side effects will be? The nuero drs are no closer than they were 20 years ago to figuring this one out. It makes so much more sense to let the vascular drs adjust your blood flow so that you do not have to take those crazy medications that are knocking down your immune defenses.
Please, MSers get your blood flow checked, then corrected with this simple treatment that has helped over 3000 already.
I am happy to say, I am still feeling alot better than I have in years! Working my legs and know they are going to get stronger. I still have terrible heat intolerance. I am hoping when I go for my followup they find another area or 2 to straighten out and maybe that will do the trick. I know I am in the early phase of this CCSVI learning curve and they are only going to keep perfecting it. Yay!!

Tuesday, September 7, 2010

The knee verdict

So I went to an orthopedic doctor, he x-rayed my knee. He said it looks good and thinks my problems are steming from weak muscles in my legs, especially my right. So this is really good news. I am going to get a recumbent bike and put it in my living room. Even if I can only start out doing small amounts I will do them several times a day and build strength. I am just happy there will be no scalpels involved!! Also going to do some gentle yoga classes. Things are going to get better and I am going to get stronger, period!!

Tuesday, August 24, 2010

3 weeks Post

Good things continue----- I recieved word that I am officially a person with insurance! Probably not a big deal to alot of people, but to a self employed person with MS, words I have not heard for about 6 years. Thank you President Obama for working so hard to get this pushed through. I know there are alot of people disappointed with the way he is doing things, but for myself, I could not imagine that job. Not to mention there is alot to clean up since our last presidents messes.

The best part of this is that I can now search out a place to rehab these legs and work on physical therapy with a professional. An even better part of all, of this is that I actually think I will be capable of getting stronger.
I continue to feel good. The spasticity in my legs feels much better than before the angio, I am very happy about that, as it makes walking so tiring when there is so much stiffness there.
My right foot still is not dropping for much longer periods of walking. The lift is just better. I think with strength it will continue. I did have a bad weekend with my right knee. It looks like there is some fluid on it and it is pretty sore. I took Chloe back to school shopping at the mall, maybe too much on this knee right now.
 As soon as I got my insurance info I was able to book an appointment with a knee dr. My insurance kicks in Sept 1, I made an appt for Sept 1. I am excited to hear the verdict of these knee issues and what I need to do.
I was at another outside cookout this past weekend. I can definately say that my heat intolerance is still there at 100 degree temps. I suppose that type of heat is not fun for anybody, but it does take the strength right out of my legs. Too bad because I like to be outside even when its hot.
All in all, I will say that my angioplasty was a success and it has only been 3 weeks. Looking foward to building on it more. I hope that all people with MS can at least be tested and then treated for this crazy condition that is causing the blood not to flow correctly. Please feel free to contact me if you need more information to make these things happen!!
Also wanting to add that the videos that we took do not really show that much. Honestly on video it is a bit hard to see the problems I have, unlike some of the dramatic before and afters that were part of what got me excited from the beginning. Just please take my word, my foot drop is better, not perfect but better. Balance is better. Heat intolerance feels no different, dang!!

Monday, August 16, 2010

Not so fast Gina

Ok, so today I was at a pool with my family. I spent alot of time in it and felt good. Then, about 15 minutes out of it getting things together to leave. It was least 100 degrees. It seems I pushed too much because I got very hot and my right foot and leg were pitiful. It went away pretty quicky as soon as I cooled off. So I am not getting complete relief from heat intolerance. I know know one understands the details of this crazy condition. I am still thankful for what has happened. I just know better than to be in direct 100 degree plus heat for very long!!

Thursday, August 12, 2010

Absolutely loving some of these new feelings!!

Took my nephew to the pool and even though it was hot my foot drop did not kick in!! I am so looking foward to some great physical therapy to get stronger.

I am really feeling more and more frustrated that this is not being broadcast to everyone with MS. It is so simple and critical!! Unblocking veins should happen for anyone that needs it, and my guess is one day we will see that these blocked veins are the beginning of MS. Please feel free to contact me to get on the path to make it happen!!

Sunday, August 8, 2010

5 days post procedure

Ok, here I am 5 days post procedure. I have had quite alot going on since last Tuesday. We flew back on Wednesday--full day
Try to catch up with some work on Thursday, full day
Friday, drive to Abilene 3 1/2 hours away to attend my sisters grad after playing more catch up with work stuff, full day again
Saturday, drive home from Abilene, bring nephew, watch ultimate fighting... till 12:00 am, another full day,
Sunday, church, grocery shopping, cooking dinner and heading to bed early ---period.
The house needs my attention and it is going to have to wait, I bet it will.

Still feel pretty good. I did notice after 1 1/2 hours grocery shopping my knee was feeling pretty crappy, but my foot was still not dropping as much as usual. That is my next step to have dr attention to. (my knee) Also going to get some accupuncture this week and really try to do some much needed recouping.
So maybe this next week with some normalcy and rest, I am going to be raving about how great everything is. Right now my right leg still feels better, I am just a bit exhausted.